Information Provision and Quality : A Pilot Study on Shared Decision-Making in Multiple Sclerosis
Kuusisto, Hanna; Apila, Seija; Saranto, Kaija (2022)
Kuusisto, Hanna
Apila, Seija
Saranto, Kaija
Teoksen toimittaja(t)
Mantas, John
Gallos, Parisis
Zoulias, Emmanouil
Hasman, Arie
Househ, Mowafa S.
Diomidous, Marianna
Liaskos, Joseph
Charalampidou, Martha
IOS Press
2022
Julkaisun pysyvä osoite on
https://urn.fi/URN:NBN:fi:tuni-202209096973
https://urn.fi/URN:NBN:fi:tuni-202209096973
Kuvaus
Peer reviewed
Tiivistelmä
The patient as an active participant in decision-making has become an important resource in health care. Shared decision-making (SDM) relies on the patient's easy access to reliable and evidence-based health care information as well as the availability of patient-generated data, such as values and preferences for the health care professional (HCP). The aim of the present pilot study was to evaluate what type of information people with multiple sclerosis (pwMS) use in the SDM process, and what are the sources of that information. A semi-structured web-based survey of SDM was conducted through the MS-society in Finland. The results are presented against the Ottawa Decision Support Framework. A total of 27 pwMS participated. We found that all the participants wished to be involved in the decision-making process, but that they seldom found the information provided by HCP to be helpful. Instead, they searched the internet and visited various conversation platforms in social media, such as Facebook groups, for additional information.
Kokoelmat
- TUNICRIS-julkaisut [16929]